on my own

I am not sure if this is the place to write this. I am not even sure where it is I am going to be saying that I am not sure if this is the place to write this. Of my approximately five options, one is a PTSD board for people with PTSD from whatever trauma, one is a board for ex-fundamentalists who have walked away from their churches to varying extents, one is a board I only just joined that seems mostly focused on sexual abuse and rape, and the last board is a board for people with invisible disabilities.

I don’t know the PTSD board very well at all and, to the extent that one can get a vibe from just a few visits to an internet board (and I can, actually, and I am usually right), I get a vibe from this one that gives me some pause as to whether queer non-religious folk are welcome there or would be treated with care. I have not been to the ex-fundamentalist board in about two years and although I did get something out of my time there I don’t remember it being a place where one talked about more general familial abuse or trauma beyond that which was directly related to fundamentalism. About half of what I have to write is directly related to fundamentalism.

The invisible disabilities board is more of a place to go when one is running out of spoons than for insight into abusive childhoods; most of the people on that board do not attribute their disabilities to abuse and most of the disabilities represented there are more physiological than psychological–although I do believe that most psychological disabilities correspond to series of discrete but complex physiological states, there are many discrete, complex physiological disabilities that correspond to no particular psychological state. In other words, my invisible disability is one that tends to get section off in its own little room, apart from those with disabling physical symptoms.
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Cultural assumptions and disability

This is from a comment I made on the ButYouDon’tLookSick’s message boards, and although I think that it is a bit of a sketch and could be expanded upon, I don’t know if I have the energy to do so now. I wanted to put it out to a, um, well, another audience, we’ll say–since “a larger audience” is probably not an accurate description of the relative numbers of readers here and there.

The thread in which I posted this was a short debate on whether disability can or should be seen as “merely” difference and whose interests it serves to look consider a condition that causes one difficulties in functioning in daily life, as it is commonly conceived, as a difference that should be celebrated or a disorder for which we should try to find cures or solutions or accommodations or any of those things with which one might address a disorder.

This is what I said, more or less, with some edits for clarity:
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The CEO in my head, or the one that never comes to work.

This post is inspired by a number of recent web developments. One is the launch of pip.io, which I am fairly sure happened a little while ago while I was not looking because that is when everything happens, mostly. But while thinking about this social networking conundrum–you know, the central question: what to do about the fact that facebook is making itself uninhabitable and yet everyone in the whole fucking world is on it and it is unlikely that any one of us will get the whole fucking world to move as a group to a single alternative social networking site and so we jump on things like pip.io and diaspora because we want to make sure we are there when the rest of the world arrives–I happened also to read a fairly lighthearted take on executive functioning at Square 8 and it occurred to me that there may be some sort of connection between my ambivalent attitude towards social networking and the difficulty I have keeping up with even the most leisurely schedule I can possibly come up with for myself even though there are many, many things that I want to do before I die and although I am not facing death in any urgent way that I am aware of, I still think to myself every now and again that another thirty productive years would be a blessing and another forty something like a small miracle given my always already tired constitution.

When I am 88 I expect I will still be reading and probably even writing, but I may not have the energy for five-mile walks every day. You know? Certainly some 88-year-olds are in lively physical shape, but I suspect that I will be one tired old man when the time comes to be an old man.

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Next

It is almost Tuesday now. On Friday afternoon I found out through quite indirect means that my claim for psychiatric disability had been approved and that in fact there was already money in my bank account as a consequence and I did not even realize it was there as I had not checked my balance in several days. The award letter itself was to have been mailed today, Monday, so I might get it tomorrow, Tuesday, unless it had to come from someplace farther away than Sacramento. It will, I imagine, say more about what I can expect every month and what to do with this Medicare card I received also on Friday with no instructions other than “show this to your provider.”

Since then I have grown somewhat paradoxically more and more anxious as I find it difficult to believe that the federal government could agree with what has been for some time my main proposition as to how I am not suited for adult life in the 21st century in a postindustrial society that emphasizes individualism and self-sufficiency and having fought with this system for thirty years trying to put together a livable way to put together a livable life it seems literally incredible that I could have addressed it in this particular way and found financial support for that which I lack in relation to it I always thought that I would be regarded in that same way the human race was said to me to be regarded by heavenly beings–as unworthy and blamable for anything untoward that may have happened to it at any time at all. And so it seems that I quite expect someone to say oh you know what we messed up nevermind you were not right after all.

Whether what follows is the sufficient and necessary etiology of my lack of faith is something I have no way of measuring and so anyone who might read this will have only themselves to consult for authority on this or any other matter I might take up for inquiry.
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as if

I think I am going to try writing here as though I had readers, to see if the spaced age sages are right and that if you make a place for something it will appear.

This one, though, will be short and prosaic but the sort of thing one would want to tell one’s readers if one had readers so I am going to tell you all that I am writing music again and have most recently put up eriktrips’ debut track “I Remember Will,” which can be found at both thesixtyone.com and at last.fm for auditioning.

A word about the mix: the vocals are quiet because that is how I have always done vocals. The words really, honestly, are not important; I am much more interested in texture and melody. I guess this means I won’t ever be a pop star but what can you do. Contrariness is deeply ingrained in my nature. Or my nurture. Or somewhere in between.

The other thing I am going to advertise in this little, um, advertisement, is the ever-bated-breath with which I await the final final galleys for my book, One Last Ditch. I have created an “author” page for myself on facebook (I am not sure if I could have chosen “writer,” but I will try to change it if possible, given that the author is beginning to smell quite ripe at this point), which is where I will put news of things like actual book releases, readings, photo opportunities, and other occasions for plugging my sorry version of poetry. And it is sorry. Not sorry, but sorry.

You know.

Carry on.

not my planet

I keep wondering why I have a blog when I put most of my everyday accounts of everyday on my LiveJournal but this one was supposed to be for something more organized and it has turned out less so. Occasionally I think of a rant I might want to write and then I think to myself oh that would be way too much trouble and so there goes another day when I put nothing on my blog.

Well this afternoon I wrote something and because it is close to bedtime I don’t have the energy for making a recording of it so you all are going to have to imagine my intonation on this one. Reading it through a few times will probably help you to decide where the commas would be if I deigned to use them which I rarely do because I do not like telling people when they should pause. Obviously the sentence needs to end so I’ve retained periods but even there I sometimes leave them out because two thoughts go together and again I do not feel the need for a semicolon to announce New Thought Now as it seems obvious enough to me.

So here is an entry. I would like to say that I am going to try to do this more often and of course I am but I cannot even begin to predict whether I will actually do so. Too many variables. I had a name for this when I started writing it but I forgot to write down the name and now I have forgotten it. It started with an “S” and I believe it was only one word. Anyone who would like to suggest something feel free.

And thus:

~~~~~~~

You ever have one of those mornings you wake up before sunrise and you already know the day is going to be too bright and too warm and one whole side of your body is aching because every time you sleep in your bed now whichever side you slept on for the past x hours wakes up in pain be it the left right or backsides. You can’t even drink your coffee without taking your bupe first because you are a little sick but you can’t tell if it’s because you didn’t eat enough yesterday or because you’re, you know, sick, so you let the good pills melt under your tongue and you’re careful not to swallow and they take forever partly because you are always dehydrated and partly because you are on such a large dose and partly because drugs always do something unusual when they enter your body in particular.

Once the bupe is melted you can drink your coffee which is cold now but that is fine as the first hint of day is already impressing you with its mildness and somewhere over the city you hear a small single-engine aircraft and right then your gut twists up just enough so you can feel it but not enough that anything you can do will untwist it. You go about your morning you have some errands to run groceries to buy bills to mail and maybe you could use a new hat but you can’t find a hat that suits you so you buy some more socks because you’ve taken a liking to a completely different kind and it will take some time to collect enough to last from one laundry day to the next and you try to remember the last time you did laundry but you can’t reckon it at all. Was it last summer? Or did you do laundry in the fall? I don’t think I did.

Last night for about a minute the objects that surround you closely in your room keeping you safe from the outside took a step back and looked unfamiliar not unfamiliar enough to send you into a panic but unfamiliar enough to make you tilt your head. You’re on your thirty-hour circadian rhythm and tomorrow is a daylight day that is today is a daylight day the day that is too warm and too bright and in the morning you heard that small airplane and it reminds you of things you cannot say or rather things you have already said and do not feel like saying again heat humidity and afternoons trying to fend off advances and it is not clear what the connection between the small aircraft and those things are except that there were lots of them back then it seems or was it his obsession with them that made you think so.

He got to work with airplanes but you never could decide what you wanted to work on much less work with and it turns out there is no work put together in such a way that you can do it and you wonder whether any other of his passions are still indulging him but you have to stop because it makes you feel like you are supposed to come to someone’s rescue if there is someone back there still needing rescue. If it were any other family you’d say oh they’re watching and not letting anything happen but they were watching both of you and look what happened.

But so you get up thinking that it will be another day like other days but after the airplane flies over you notice the objects surrounding you taking another step back and the day becomes like another kind of day as familiar as the day you were expecting but older by far like so old you cannot place a beginning date on it older than time which to you is only a little less than 50 years old at this point before that the same oblivion that awaits you the same immersion and dissolution or that is not the same but another configuration in which you do not figure as anybody anyone would recognize.

I aim to be dead long before I die but still moving in fact moving so fast I am as transparent as a blur. Life I’ll say it again once more lines itself up with and runs alongside that which is not its reverse but its twin the same only a little different that difference just enough to matter or to make matters not worse but worsted or basted or stitched together skin reaching into its own decomposition and growing together with it.

I know few Christians who do not fear death. I should qualify Christians with Conservative or maybe I should just say my mom fears death more than any other saved soul I have ever met. Her heavenly home is already built and lit and polished and awaiting her whereas mine is uncertain or I should say it consists of the internal consistency of what’s uncertain where nothing survives but the question of what now or what next and not to suggest that I have achieved some superior understanding of understanding I have achieved only less and less understanding the more I have come to know but that last step into whatever no longer frightens me particularly. It seems unthinkable naturally but that is only because it is. Where thought stops there is no imagining a what now or what next and that is impossible to understand or comprehend so the only reasonable response is to give up knowing.

When the sun shines down finally swinging over to the west as it does implacably every day around this time is when what you most cannot say presses itself mute and suffocating. Because you wish to be concrete you think to mention the bed or the blue curtains or the way that room in particular hung over the northeast corner of the house precariously because as I said storms come from the southwest and so you want to be under the southwestern wall as they are more likely to hop over you and take that bedroom right off the opposite side of the house. We lived on the side of a hill not the very top but on a low ridge on the side of a larger hill but there were no hills in front of us that is none close by to the west where I thought we needed one.

One night the wind blew so hard it started to roar and we who thought we would always know and have time to head down to the basement were caught listening in paralyzed wonder at how much louder it might get before dying down.

What is there to tell in a story and to whom does one tell it. You could make a list but there seems little point in explaining it point by point this is not an exposé. Another engine sounds somehere on the network of streets in which you now live encircled by motorized traffic how could you have chosen this for yourself the internal combustion engine was his fetish and now you must listen to them all thirty hours. Mostly they blend together into a pleasant rushing hum but ever so often someone finds it necessary to show off their skill at defeating the purpose of a muffler and if it only makes you think of rednecks and beer you get off lucky.

They’d kill you if they knew you but if that’s it then they are relatively harmless. There is no such thing as worse than death because death is not the worst thing we can imagine we only think it is because we cannot imagine it at all and somehow that makes it terrible. Nothing is worse than death not because death is the worst of all things but because the comparison is without sense. What makes sense or what remains barely intelligible in the face of tremendous pain is that life can bear atrocities and keep going. To experience a fate worse than death means only to have to take on at full intensity the capacity of life for suffering. That there are infinite ways to suffer and infinite variations and gradations of pain—

I was born without endorphins. This is not strictly true or rather it has not been medically established but my hunch is that some level of some one or other of them is not what it would optimally be. I realize this is to claim that my pain is worse than yours but that is not the point at all it is that I do not understand why everyone is not screaming. Why are you not screaming. Very few do and most of them are very young. I am told I screamed a lot and was a “fussy” baby. I think that meant I annoyed my parents with my susceptibility to discomfort. As an infant I was allowed to convulse.

You’d think, this many words in, that you could have named it by now but that is the heck of it it won’t be named because the only things I could say about it would be insufferably mundane he put his thing there and asked me to do this other thing that I did not want to do and I said no many times but he badgered me as many times as I would say no plus the one time I would finally give in.

This happened repeatedly.

See what I mean? There is nothing there about single engine airplanes and their low whine and objects receding or the time and the place getting lost inside of the labyrinth where I try to hunt down what pricks.

It was not just the physical discomfort or the shame but the continual battering at my puny defenses and he certainly was not the only one and his way was not the only way in which it was done.

Have I listed my diagnoses lately? Someone on the Internet has asserted that many psychiatric diagnoses are subsumed by PTSD. If that is true then the only diagnoses leftover from all I have written on my records would be Complex PTSD if it were yet diagnosable overlaying everything else only with Psychotic Features still sticking out thus making me a case of Complex PTSD with Psychotic Features. Everything else disappears viewed through the lens of this possible information for what is information but possible information when one is not sure yet whether it states the case exactly. Left out also is the question am I on the Autism spectrum but that question has been tabled until such time as I can afford to ask it privately. Until then I am simply going to assume that I am.

I hear sounds that few others hear. I have physical sensations that few others have. I only like the sun in the wintertime when it is low and scattered not only because it is less bright but because it signals cool air and it causes colors to floresce. At least, I see them floresce. This happens almost every evening as well up to a certain amount of cloud cover.

I forgot the Opiate Dependency. I can never remember that it is considered pathological.

If I keep writing the engines will stop.

Right?

page two is page one

I have been working on this drawing for a couple of days which I do not know if it really excuses me from not posting for two days but there it is. I have also been sleeping. I sometimes sleep for hours and days on end.

This is page two which is really page one of the book I showed you page one of the other day (that page is really about page 9—I opened the book to a random page to start). With this one I took a very soft pencil and tried a few different ways of following the paper itself which I may have mentioned is a very coarse handmade paper and so it invites you to follow it, sometimes rather strongly and sometimes very subtly. I am still trying to write without writing anything but even this seems to suggest certain things to the pattern-seeking brain and so it may be that writing without writing about anything is something one cannot actually ever show to anyone else.

This page I coated in acrylic sealer after I was finished writing so it is semi-translucent in spots. I ended up laminating it to the page underneath not accidentally but not with a great deal of aesthetic forethought. I think together they turned out fine but you cannot really tell that you can see through them on the scanner.

This is a thumbnail that leads to an image just under 1000px wide:

page two page one pencil on oiled paper

page two page one pencil on oiled paper

writer’s book

this is the first page of a book that I am trying to dedicate to different forms of writing. that might not be apparent on first glance. it is completely abstract: mainly line, some color, no traces of letters but I started it out in pencil, following the contours of the very rough, handmade paper. this is not the first I have done this sort of drawing but it is the first time that I deliberately associated it with writing while making it. whether that makes it writing is not necessarily for me to say, but I was trying simply to write when I laid it out. other pages might come to contain that which is more recognizable as English or they might not; my only plan is to write, in one way or another, on each page subsequent to this one.

that is all I am going to say for now, except that you can click on the image to display a larger version. we’ll see how the rest turn out if I can ever learn to do this sort of thing more quickly than one piece every two months.
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redo

I swear I posted on the third, fourth and fifth–or was it the third, fifth and sixth?–I managed to miss a 24-hour day in there somewhere by living a 36-hour day which included staying up for 24 hours before taking a very long nap but um this is not my personal journal so I do not mean to be diarying here just explaining that see my web host was doing a migration and somewhere in the interstices between servers three of my posts for NaBloPoMo slipped away into dust or whatever it is that bits become when they cease to be.

or, um, wherever they go when they all get zeroed out. I guess they resolve into non-difference then although I imagine it could be argued that the circuits in which the zeroed data used to exist still remain as heterogeneous surfaces or objects although I know it is not meant to be made of more than one or two things but still there is no such thing as repetition or there is no such thing as an identical instance of zero.

mathematicians will argue with that but I am not meaning to look at zero as a defined entity or a defined non-entity but just an instance and instances never repeat although they do cycle through. the circle is a spiral but it is not headed anywhere. it does not spiral up, for instance. nor does it spiral down, left, right, south, north, east or west. I would say it spirals in place but spiraling instances do not stay in places.

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what to say

so it seems that my last two posts have disappeared from my database during a web host migration to a different server. I would go into some trouble to track down a backup but I think I can re-do them a little later but first I must post today’s piece.

this started out as an unremarkable piece of ascii art which for just a moment became something kind of interesting but I ruined it and by that time I was out of undo’s and recreating it from scratch would have been a waste of time so I kept working at but it was unsalvageable once I passed a certain point so I finally deleted almost all of it and made this from the little bit I kept, which is not ascii art as it now contains utf-8 characters although that doesn’t matter since it isn’t text at this point.

I am not yet certain if I like it or not or if it was successful in any way but I did try something completely absurd and ended up with something completely unrelated to my first idea and looking good enough that I dare to post it.

it’s a bit minimalistic. it might help to download it and look at it against a darker background. perhaps I should have created a dark border for it. perhaps I will. not right now, though.

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